Its Brittney Bitch <3 (yoshiiii) wrote in hysterectomies,
Its Brittney Bitch <3
yoshiiii
hysterectomies

hello

im not sure how active this comm is but i figured id try and get some advice. im 22 years old, and since the very first cycle of my period it has been hell. i have not been clinically diagnosed with anything but every doctor has told me my symptoms show I have PCOS. The thing is ive never had a cyst or anything really serious minus the pain. Its so weird.

At the very moment I have had my period for 4 months. Heavy. Last year I had it from Oct to July heavy. I was anemic. I had to be in the hospital for 3 days because I was hemmoraging. And not one single doctor can tell me what is wrong. I have had so many tests. So many issues. And it is painful. It feels like 7 months of someone punching me in the abdomen and its caused my life to be full of embarrasment and stress due to bleeding so much all the time.

Not to mention the hormones.

Since none of the doctors can tell me what the hell it is, i am seriously considering a hysterectomy. Can anyone tell me the answer to these questions?

1. I have read in some places that you will gain weight but other places say you will lose it. which is it?

2. Do you lose your sex drive completely?

3. And what kind of hormone treatments do they put you on?

See the main symptoms I have are that i guess I produce mere traces of estrogen. So my body doesn't ovulate for months. and all of a sudden it does for 8+ months. I produce more testosterone. I also have a lot of facial hair, dark patches on my arm pits, elbows, and inner thighs. I have an impossible time with depression. And i have always been obese, and can never seem to lose weight even when i legit try my hardest.

Ive been tested for diabetes and all the thyroid stuff. NO ONE CAN TELL ME WHAT THE HELL IS WRONG WITH ME> HELLLLP!
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You have multiple symptoms of PCOS, or polycystic overian syndrome. It is a metabolic condition. Have you been tested for it?
I'm sorry, you say you already have. Cysts are not the sole indicator of PCOS. Given your symptoms, your doctor should be treating you for it. Is s/he? There are several medications which can help, short of a hysto.
i was on hormones and birth control for about a year. they made me gain a shit ton of weight and did not help the pain or regulate me at all. ive been on nothing for about 4 months now.

i have no idea what to do.
You can ask about spiro, which is an androgen blocker, and metformin, which increases insulin sensitivity and can help regulate metabolism. Anti-depressants are also an option if you feel they might help.
My situation is very different from yours. I had a hysterectomy at 38 for a large fibroid & irregular bleeding while on the pill. I kept my ovaries.

Post surgery.
-At present I take no artificial hormones.
-I neither gained, nor lost weight. I find that depends much more on what I eat & how many dance classes I'm teaching/taking a week.
-I have no trouble with my sex drive/sex life. It's AWESOME. (same as previous.)

Best of luck.
I have a similar story to dancingleaf with similar results...though I only have one ovary left

Deleted comment

Hi treemoonfire. To answer your question - Yes - I did keep both my ovaries. They did take the uterus including the cervix - sometimes keeping the cervix is an option but not in my case.

I do remember the fibroid interfering with my normal activities BEFORE the surgery including exercise and even day to day life. I don't remember being sluggish but I do remember not being able to sleep through the night without having to empty my bladder AND having to pause between dance classes for the same reason.

best of luck - I'll be happy to answer any questions you have - send me a message or friend me. :)
Have you ever had an endometrial biopsy? I had severe bleeding like you're describing after long periods of nothing, and it took me years to find a doctor that would actually investigate properly and diagnose me. It turned out that I had endometrial hyperplasia, but it wasn't caught early enough for my treatment to keep me from developing uterine cancer. Fortunately, the cancer was early stage, and I'm more or less fine after a hysterectomy. Anyway, I just thought I'd share a bit of my experience in case that's a test you haven't had yet.

Post surgery, I have gained some weight -- but I believe that's due to my lingering depression and the difficulty it's caused me in being more active. For a few months after my surgery, my sex drive was very low, and sex has felt different for me. That being said, my body is adjusting to its new reality now, and I'm finding things are getting a bit closer to normal over time. I don't take any sort of hormone therapy, but for me that's because my cancer is partly due to exposure to estrogen, and if I were to take hormones they could cause my cancer to recur.

Good luck to you!
I have PCOS, but I kept my ovaries. I had my hysterectomy at 27, and I was not about to go on hormones. I made that decision in conjunction with my doctor.

My sex drive is actually higher. The hyst was for adenomyosis, and I actually was in so much pain when I had sex that I never wanted to have it. My poor husband was thrilled when that thing came out and I was back to normal again.
I too have had continuous problems with cysts, bleeding for months,and migraines. I have the same problem that you had as far as not wanting to have sex because it is too painful. It is affecting our relationship. I also have endometriosis. I have had problems since i have had periods and it has gotten worse to the point that I just want everything gone. I have no kids though I have been trying with my husband for 7 yrs. I am 27 and have tried birth control, depo shot, and lupron but really have not gotten any relief. I also have had two surgeries already one to remove a cyst and the second was to remove my left ovary and tube. I just recently went back to my doctor and she wants be to keep doing lupron and birth control even though it obviously is not working. She was us to try to do In vitro but that is way beyond our budget. I am totally okay with adopting or fostering and have come to accept I am not going to get pregnant. Now I just want everything gone. But she does not want to do a hysterectomy because I am so young. But I am tired of the constant pain. Can they really refuse to do a hysterectomy?
I had mine largely because of PCOS. (with a side of other minor complaints)

To answer your questions-

1. I have read in some places that you will gain weight but other places say you will lose it. which is it? I have lost nothing. I have gained nothing. For me, I think my body just got used to being round, and likes it this way. I was tiny until I was 22, when PCOS slammed down, and I gained 80 pounds in 2 months. I've been round since.

2. Do you lose your sex drive completely? I'm not AS crazy sexual as I was before the hysterectomy, but I think that is because my male hormones settled. I am still very sexual though. So no, I haven't lost mine.

3. And what kind of hormone treatments do they put you on? I'm on the vivelle dot, which is basically a sticker with hormones that seep into the body through the skin. I change it twice a week.

Good luck... it is a tough choice to make, for some.
Hello, I just had a hysterectomy on 12/30 so I thought I'd answer your questions. I am 29 years old and had a total hysterectomy, but they left my ovaries.

1. I have actually lost weight, it varies from person to person.

2. Can't answer that one yet, as it hasn't even been 3 weeks since I had mine. If they leave your ovaries, it usually doesn't affect your sex drive as your body still produces hormones.

3. If you keep your ovaries they don't put you on any. Given your age, you probably wouldn't lose your ovaries unless you had ovarian cancer.

Hope this helps at least a little bit!!!
1. I have read in some places that you will gain weight but other places say you will lose it. which is it?
it depends on the person, I had my hyster may 28th 2008 and my weight loss that I had started back in 2003 halted all together I've not been able to get it to budge since the hyster - but not gained any which is good thing

2. Do you lose your sex drive completely?
no, i gained a sex drive after living without it for all of my adult life

3. And what kind of hormone treatments do they put you on?
nun - don't feel like going on them less i have no choice in the matter and so far so good
I am 25, and was in a very similar situation to yours. I was never diagnosed with anything really... but became exhausted with the symptoms and lack of life quality. My hysterectomy was 1 week ago. This is a major decision, especially at a young age. Saying that, I finally stopped bleeding... it's amazing. When you reach a point where it has consumed your life, you must weigh out all options. Sometimes, there are no good solutions, only better options. My doctor anticipates my sex drive to increase, if for nothing else but I will feel better. I will no longer be taking hormones, so the thought of actually being myself for a while is unbelievable. The details of things are no need to post, but I wanted you to know I understand where you are. I am a second year medical student that actually had to take a year off because of all this crap. Well, anyway, if you have any more questions, please ask. You can send me an email at sherandagu@yahoo.com. Good luck, hope you find a solution!
-s
Hello, I am going to be blunt here. I would not advice a hysterectomy to any women unless it is cancer. When the uterus is removed a women can never have a orgasm vaginally ever again. The doctor no matter how good will damage the vaginal nurves. I have had a hysterectomy almost 3 years ago. I am in consant pain. I can't find a doctor who will tell me what is wrong. So I have done research on the surgery. Please don't consider a hysterectomy. If you have time go to a medical library and look up what a hysterectomy all involved and you will not like it. If you go to a medical library you can ask the librarien for help. You might be able to look up your problem and find out what it could be. I would also see many doctors. If you have to see 20 to find out your problem that is what I would do. Don't let a doctor convince you of a hysterectomy. You can have heart problem and more. HRT can't put back into the body what your natural body makes. You can also try a hompathic doctor. It could just be hormonal imbalance. There are many options out there that you don't need a hysterectomy. You just need to find the write doctor.
Valerie
I had a hysterectomy two years (at age 28) ago for very similar problems. I have PCOS and you certainly have all the clinical markers for PCOS.

For me it was the right decision. I kept my cervix and ovaries but at this point my ovaries are failing. I'm still 100% pleased with my decision since my ovaries were all messed up pre-surgery and now I don;t hemorrhage (yay) but I'm looking into treatment for the early (I'm now 30) menopause. One thing to know is that there is a high chance that the surgery even leaving the ovaries will, within 5 years, cause the ovaries to partially or completely fail.

1-I neither lost nor gained weight (I have used Chromium picolinate to help stabilize my metabolism and weight but its tough I know).

2-My sex drive spiked for a bit after surgery (from the first week post for a year or so) and now its about the same as it was but because of my current hormonal mess I'm not having as much (loads of vaginal dryness which sucks but still nothing compared to the old periods).

3-no hormones at the moment.

Best of luck figuring stuff out, its a tough decision to make (I already couldn't have kids so that part was easier an also helped convince the doc). And if you go for the surgery find someone who can do it laproscopically, much faster / easier recovery.
Hysterectomy is the surgical removal of the uterus, a reproductive, hormone responsive sex organ that supports the bladder and bowel. Whether the surgery is performed abdominally, vaginally, hands-on laparoscopically or laparoscopically by a gynecologist controlled robot, a hormone responsive sex organ is removed, the vagina is shortened, and there is a loss of support to the bladder and bowel. Women who experienced uterine orgasm before the surgery will not experience it after the uterus is removed.

When the uterus is removed women have three times greater incidence of cardiovascular disease than women with an intact uterus. When the ovaries are removed the incidence seven times greater.

There are 22 million women in the United States whose female organs have been surgically removed. Only about 2% were life saving and 98% were elective, a euphemism for unwarranted. Girls and women are not educated about the functions of female organs and they are not informed about the adverse effects of hysterectomy that have been well documented in medical literature for over a century.

Women who might ignore this promotion in an obviously commercial advertisement will be vulnerable to believing there are no adverse effects of the surgery. An article that makes hysterectomy sound simple and inconsequential is dangerous to women.

Read the new book THE H WORD, and find out what the medical literature documents about the well-known consequences, and what women report about the effects of hysterectomy on their bodies, their health and their lives, and read the Adverse Effects Data at http://www.hersfoundation.org.


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Responses to LH, LSH

This article makes it sound like laparoscopy to perform hysterectomy is simple and inconsequential.

It describes the alleged benefits while not providing the well documented adverse effects. If you watch the surgery being performed on youtube (click on the video for physicians, not the sanitized patient version) you will quickly see that this is highly invasive destructive surgery.

Hysterectomy is the surgical removal of the uterus, a reproductive, sexual, hormone responsive organ that supports the bladder and bowel. Whether the surgery is performed abdominally, vaginally, hands-on laparoscopically or laparoscopically by a gynecologist controlled robot, a hormone responsive sex organ is removed, the vagina is shortened, and there is a loss of support to the bladder and bowel. Women who experienced uterine orgasm before the surgery will not experience it after the uterus is removed.

When the uterus is removed women have three times greater incidence of cardiovascular disease than women with an intact uterus. When the ovaries are removed the incidence seven times greater.

The average weight gain is 25 lbs. in the first year after hysterectomy. The metabolism is slower after a hysterectomy and slower when the ovaries are also removed. So you have to eat less to not gain weight after the surgery, and it's important to have a diet high in calcium and to do weight bearing excercise, like walking or jumping rope.

There's an excellent video to learn about what your female organs are, where they are, and their life long functions. It's "Female Anatomy: the Functions of the Female Organs", at http://www.hersfoundation.org/anatomy