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Below are the 20 most recent journal entries recorded in About Hysterectomies' LiveJournal:

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Thursday, December 1st, 2011
7:13 pm
Saturday, September 24th, 2011
4:50 pm
Travel & Weight Management
I have a guest blogger on Travels With Pain!

My friend Laina has just started a blog called Keeping off 200 Pounds. Which she's in the lifelong process of doing. She amazes me continually--in a world of fad diets and yo-yoing, she lost 200 pounds and has kept it off for more than 8 years now.

When I started reading her blog, it became clear that a lot of the tools she uses to maintain her weight are similar or even the same as the tools I use to travel with pain. And I know that it's tough to control food intake on the road. So I asked her to guest post with me, and she wrote these two great posts:

* http://travelswithpain.com/2011/09/20/how-to-travel-while-managing-your-weight-part-1-vacationing/

* http://travelswithpain.com/2011/09/22/traveling-weight-management-part-2-business-travel/

Current Mood: cheerful
Sunday, August 21st, 2011
4:24 pm
Jeans With Pain, Redux
So one of the sponsor/exhibitors atBlogHer 2011 was Lee Jeans. I went up to their reps on the expo floor and asked the Big Question:

“I’ve got chronic pelvic pain, and jeans dig into all the wrong places, especially when I sit for a long time. Airline flights especially. But I love jeans. Do you have any that you think I could wear on the road and still be comfortable?”

One of the booth workers…wait for it…had an answer for me!


Current Mood: complacent
Saturday, October 2nd, 2010
1:18 pm
Post-Op Travel

Had surgery recently? Planning to travel? Please read this:

Post-Op Travel

Have I missed anything, major or minor? If so, please post here, or better yet comment directly onto the blog.

It occurs to me that I didn't specifically call out the pillow or towel to put between the belly and the seatbelt for patients with recent hyst incisions. (A sweatshirt or jacket works in a pinch.) This technique works both on planes and in cars.

Current Mood: calm
Thursday, August 12th, 2010
1:46 pm
Another pre-op question
Sorry to post again so soon - I'm not sure if that's bad form in this community - but I thought of another question I forgot to ask.

I generally sleep on my stomach. Can any other stomach-sleepers share how long it took before they were able to sleep that way? I can sleep on my side if need be, but it's not as comfortable. Sleeping on my back will require me to be very tired (or drugged up), and presumably so ensconced in pillows that I won't immediately roll over as soon as I fall asleep. Thoughts/advice/commiserations?

Thanks in advance, and thanks to all those who responded to my previous post! Most responses greatly appreciated there too. :)

Current Mood: tired
Thursday, August 5th, 2010
4:08 pm
Pre-op questions
Hello all! I'm a Trans guy and just recently scheduled my hysto for 13 October. (Side note: Dr Vlassis Travias of Concord OB/GYN in Concord, MA, is amazing and I highly recommend him. Trans folks will be pleasantly surprised to hear that he comes pre-educated and really gets it. I didn't have to explain a single thing to him during my consult. For the unaware, that is an extremely rare thing when dealing with medical professionals as a Trans person. Usually we have to put considerable effort into helping them do their job as well as taking care of ourselves. This time I get to just be a patient and let the doctor do his job. Luxury.)

I have an outstanding support person coming with me, the surgery is outpatient (it's early in the morning to increase the likelihood that I'll be feeling well enough to go home the same day) and I'll be recovering at home, I'm taking two weeks off of work, Dr Travias is optimistic about getting it covered by my insurance, and it seems like my ducks are mostly in a row at this point. But I still have some questions for folks who've been there.

Six questionsCollapse )

Thanks in advance! I'm nervous, but increasingly excited for this to happen and be over and done with - I've wanted it for a very long time. And the more prepared I feel, the less nervous I'll be and the more I'll be able to focus on my excitement, so any and all advice is very much appreciated!

Current Mood: hopeful
Thursday, March 11th, 2010
11:20 am
A practical account of my hysterectomy so far:cut for long windedness/TMI/Just because. No one should feel compelled to read it>Collapse )It was .... interesting.
Saturday, February 6th, 2010
9:31 am
I now have a date for my op.
I am to be admitted on the 7th March, with the op scheduled for teh morning of the 8th. 1 month away.

Since I've heard I've had butterflies pretty constantly, and it's a perpetual presence in my mind. At the moment half of this is around all teh sorting I have to do at work before I go -reallocating my case load, getting things done etc. I think I'm still in denial 'cos the remainder of my thoughts are about the practicalities of recovery, where I'll be staying, who'll feed my cats etc.

When I do allow myself to actively think about the rest of it, I feel sick and get cramps!

Yay for dealing appropriately


Monday, September 21st, 2009
4:22 pm
Question about HRT
I had a full hysterectomy with oophorectomy in June of this year. I was on bio-identical HRT for a while but have recently stopped taking anything. Has anyone done the bio-identical HRT before? Did you like it? Are any of you women just going through this with no medical assistance? Besides the hot flashes, I feel much happier without the HRT. But I am scared of what this might mean for me in the future, like if it is a bad idea to not have ANY hormones at all. So any help would be greatly appreciated!!
Thursday, August 20th, 2009
6:23 pm
I'm nearly 2 years post hysterectomy.  Still have both ovaries.

How do I know if I'm having hot flashes or if it's just a wonky air conditioner?
Wednesday, March 11th, 2009
8:32 pm
literature for the older crowd?
My mom is 60 and had a complete hysterectomy 2 weeks ago. She had already gone through menopause so shes not having any problems there. However shes wanting literature on women her age that have had this procedure. Shes only found books for younger women and she is getting discouraged reading about early menopause etc etc since its not affecting her.

Does anyone have any suggestions on books, magazines or websites for older women that have had hysterectomies?

Thank you
Thursday, January 15th, 2009
4:37 am
im not sure how active this comm is but i figured id try and get some advice. im 22 years old, and since the very first cycle of my period it has been hell. i have not been clinically diagnosed with anything but every doctor has told me my symptoms show I have PCOS. The thing is ive never had a cyst or anything really serious minus the pain. Its so weird.

At the very moment I have had my period for 4 months. Heavy. Last year I had it from Oct to July heavy. I was anemic. I had to be in the hospital for 3 days because I was hemmoraging. And not one single doctor can tell me what is wrong. I have had so many tests. So many issues. And it is painful. It feels like 7 months of someone punching me in the abdomen and its caused my life to be full of embarrasment and stress due to bleeding so much all the time.

Not to mention the hormones.

Since none of the doctors can tell me what the hell it is, i am seriously considering a hysterectomy. Can anyone tell me the answer to these questions?

1. I have read in some places that you will gain weight but other places say you will lose it. which is it?

2. Do you lose your sex drive completely?

3. And what kind of hormone treatments do they put you on?

See the main symptoms I have are that i guess I produce mere traces of estrogen. So my body doesn't ovulate for months. and all of a sudden it does for 8+ months. I produce more testosterone. I also have a lot of facial hair, dark patches on my arm pits, elbows, and inner thighs. I have an impossible time with depression. And i have always been obese, and can never seem to lose weight even when i legit try my hardest.

Ive been tested for diabetes and all the thyroid stuff. NO ONE CAN TELL ME WHAT THE HELL IS WRONG WITH ME> HELLLLP!
Sunday, November 16th, 2008
10:19 pm
I am new to this community.  I was refered by someone in the womenhealth  community, so I just cross posted what I'd had there.

I honestly, just don't know where else to turn.  I am 24 years old, I'll be 25 in April.  I've been married for 3 years in May.  When I was 14 years old, almost 15 I had an ovarian cyst on each ovary, about softball size, I had emergency surgery to remove my right ovary because the cyst caused it to "twist" and basically killed my ovary, they had to remove my ovary and tube.  It started lapriscopically but they ended up having to cut me open, from navel to pubic line in a 'zipper cut'.  This surgery was more or less a hack job at the local childrens hosptial.  That doctor then referred me to an adolesent gynecologist.  I started birthcontrol and other various hormone treatments, my periods were so heavy and painful that I missed school and was basically bed ridden for my cycle, I was on Lortab the cramps were so bad.  This went on for about two years, finally on my 16th birthday, my doctor decided to do a lapriscopic surgery to basically treat what he thought was endometriosis and he was just going to do a quick, routine DNC.  Well, the quick surgery became an 8 hour ordeal.  There was so much scar tissue from my previous surgery he had to do 8 hours worth of surgery to just 'clean up'.  He told me then that he thought my right tube was still basically covered up with scar tissue and in order for me to have children, I'd have to have another surgery. 

I've had various problems off and on since then.  I still have very heavy/painful periods.  I've tried every birthcontrol known to man, I've done depo, the patch, desogen, low ogestral, ortho tri cyclen lo, just to name a few.  The depo did the best, until I started getting migraines, most birthcontrol gives me migraines.  

About a month ago, my husband and I decided we wanted to start trying to conceive, I stopped my b/c, my migraines went away, and we tried to conceive.  About 3 weeks off of the pills I started getting this horrible sharp pain on my left lower quadrant.  The doctor did a pap and gatherd other samples and found that I had some infection (mainly ureaplasma) which I have had in the past, so he put me in the hosptial and gave me IV antibiotcs.  I got better for a few days and it was back.  We tried oral antibiotics, it never went away.  So he readmitted me to the hosptial.  I stayed in a week this time doing an entire round of four or five antibiotics.  I got better, it came back with in 2 days.  He tried oral antibiotics again, flagyl, clindmycin 450mg 4 times a day.  It didn't go away.  

I am very overweight.  My doctor says he's "scared" to do surgery on me because of my weight, he says they'd have to invert the table and it would put pressure on my heart and lungs.  He's also worried it will become another long surgery based on how my last one went, he's worried that they'd have to cut me open again.  He advised us that it would not be good for me to try and get pregnant now either because of the weight.  I've been talking off and on with him over the past week about the possibility of doing surgery, he's concluded that there is either one of 2 things wrong, there is infection deep embedded in the adhesions from my previous surgeries, or, there is damage to my falopian tube.  If the latter is the cause of my pain, he said I could possibly lose my tube and or ovary.  If they could save the ovary, then there would be a possibility of being able to do invitro later on.  Then he said the worse thing I have ever heard in my life, but you should think about the possibility of a hysterectomy.  

I am 24 years old, I have been wanting to be a mother for so long, My body has been screaming at me that I want a baby for months now, and now, as soon as we decided to start trying, I'm faced with the possibility of it all being taken away.  So here's my question(s).  Where can I go for support?  Does anyone know anyone who has had to have a hysterectomy so young? Are there any groups online?  I'm going insane.  I'm so scared, and I'm TERRIFIED of a hysterectomy.  I'm so depressed now, I'm worried I wont be able to handle if I do actually have to have one.  I feel like, if I could just talk to someone that's been through this, if I could just, know I'm not the only person in the world that is going through this, maybe I wont go completely off the deep end.  

Thanks for taking the time to read this.

Tuesday, July 29th, 2008
7:45 pm
My doctor just scheduled my hysterectomy for August 6th -- which is a little over a week from now! Eeek!

Ahem. I'm 24, have severe endometriosis (it grows into my bowels and other parts, lovely) and have had a lap and D&C before... instead of another lap, the doctor okayed a hyst. My endo apparently doesn't respond well to darn near any treatment, and I have a family history of endo and other immune/thyroid/medical problems. So out it goes!

I've already prepared myself for it emotionally -- never really wanted kids, still don't, like the idea of adopting if I ever want kids -- since I've been in pain since I was, oh, 12, and started daydreaming about a hysterectomy back then. But it's so sudden, in terms of planning and stuff! Eeek! My recovery from my lap was horrible.

My question for those who have been there:

What are the most important preparations to make? Comfort items? I bought a big microfiber bathrobe and I eat gluten-free anyway, but are those "swelly belly" bands worth buying? I'm having a laparoscopic hysterectomy -- but the LSH kind. (My doctor is big into vaginal floor support. But both ovaries are going; I insisted.)

It seems like a lot of us are having these young, so I don't feel particularly odd emotionally... but I'm in sort of low-grade-panic "WHAT DO I NEED TO DO BEFOREHAND?" mode right now.
Thursday, June 19th, 2008
12:38 pm
is it normal not to feel normal after 6 weeks?

I had a full abdominal hysterectomy with a vertical incision on 5/1 (the surgeon used a vertical incision because I'd already had one for a previous operation anyway).  My one remaining ovary was taken out, and I am currently on HRT.  The surgery was fairly complicated--there were bowel and bladder adhesions to deal with--but everything seemed to go smoothly.

I'd had previous abdominal surgeries (one to remove an ovary due to endometriosis, and another for a multiple myomectomy), so I thought I knew what to expect.  And for the most part, I did.  I was very good and waited the full 6 weeks to do anything relatively strenuous.  At 6 weeks, I went for a short bike ride, and all was well.

At about 6 1/2 weeks (this past Sunday), I went for a longer bike ride--about an hour long, but nothing horribly strenuous.  Again, everything seemed pretty much fine right after the ride.  But then about two days afterwards (which is when I'm usually the most sore), it hurt to urinate:  when I reached the point of full relaxation of the muscles, I'd feel a large twinge in my bladder and vagina and down my left thigh.  I'd experienced similar sensations earlier in the recovery, though not as bad as this.  Somewhat less alarmingly, my stomach muscles also seem sore.  Everything seems to be gradually getting better again now, but I am afraid to do anything more than a walk around the neighborhood. 

My doctor did warn me that my bladder would feel funny for quite a while.  However, I'm pretty sure I remember feeling thoroughly healed at 6 weeks after my previous surgeries (though obviously they were less extensive).

Is this normal for a full abdominal hysterectomy?  How concerned should I be?

8:58 am
Cervical woe
I've just been informed that my cervical dysplasia is being a jerk and not clearing up after Cryotherapy and a LEEP. In fact, it's worse. Bugger.

My doctors are awesome though, and we've decided to be as agressive as we can with this shit, since everything we've done so far just seems to have pissed it off. We've scheduled another LEEP because it's just spread to the opening by the cervix, and it's gotten deeper into the cervix itself, and if this doesn't help, I've told them that I'm down for a hysterectomy if need be. I'm 30, and wasn't really planning to have kids anyway (unrelated crazy genetic issues that I keep finding out about that I couldn't DREAM of dooming a kid to) but I'm curious to any of you who've gotten a hysterectomy, how did you deal with it?
I go in today for another checkup to see what's up, and I plan to ask her more, but should I go that route, I'd really like some input from those who've had it done.

Thank you!
Tuesday, May 6th, 2008
10:43 am
Hi. I'm 31 years old, married with 3 children and struggling with endo and an enlarged uterus for the past 2 years. Luckily I never had any problems while having children but it started after I was done and off BC (my husband had a vasectomy). So... after many visits to find the right Dr, ultrasounds and exams, the new Dr I saw suggested the only way to help with the pain is to take the uterus out and my cervix. This was after he examined me and I was in pain. That and my uterus is enlarged and I had surgery last year for endometriosis. So towards the end of my appointment he recommended this and we talked for a few minutes about other treatments and he said it was up to me. 

So my question is, should I go back and talk about the surgery again before I schedule it? He said I don't need to come back. I can just schedule the surgery and he'll see me at pre-opt. But I feel like I have more questions to ask before pre-op time. Would I seem silly going back in there to ask more questions to make me feel better? And at that, what type of questions should I even ask?! I'm pretty nervous about doing this and want to feel comfortable and make sure I understand everything.

Tuesday, March 25th, 2008
2:04 pm
Pain post-hysterectomy.
Hi, I had a TAH-BLSO (?) last year, but I am experiencing some abdominal pain that feels a lot like it used to. I am on HRT, is there anything they can do if you get adhesions after a hyst? I know I have adhesions on my bowel, etc, and I am really worried that they will not be able to do anything for this pain.

Any advice would be gratefully appreciated!

(x-posted to hysterecomies and Endo groups)
Friday, February 8th, 2008
9:50 am
Hysto at Relatively Young Age
I've suffered debilitating cramps for 25 years now and have always debated getting a hysto. Now that I'm older, my doctors seem willing, though not eager, to let me do it if I push them (they finally seem to believe me when I say that I don't want kids). I'm starting to seriously consider the option and have some questions for those who have been through it at a relatively young age.

Thursday, February 7th, 2008
10:41 am
Just looking for some information.
Hey y'all.

I'm not here for any seriously serious reasons, like, to get a surgery or anything. I guess my whole reason for being here is plain interest. I have a friend that's female and 21 and naturally transgendered, to the point she goes by a male name (Matt), considers herself male, and is referred to as male by all of her friends. This doesn't bother me or any of his friends, but he wants to get the surgery some day, and I've always thought about it as a general concept more than anything.

Physically I'm quite young (still a teenager, so, probably the youngest here), and I'm biologically female, so I'm not looking into anything like this anytime soon but I always considered it for the fact I feel more male than female, never want kids, hate periods, and generally don't like being in a female body and thing I'd prefer a male one. People even refer me to both genders at times because I just don't care. I can't quite explain it, but yeah, I'm just looking at the possibility some day.

I found this community just because I was curious to see if there was anything about it on LJ, and what do you know, there is. So, here I am.

Basically, I just want to know what it's like; stories, opinions, viewpoints, anything. Does it hurt? What's the surgery like? I read some of the comments about recovery and things, it doesn't seem near as bad as I first thought.

The thought kinda makes me nervous, for reasons I'm sure are understandable, but at the same time it makes sense and there's no way I'm judging anyone for it. So feel free to tell me whatever, I'm here to listen and hopefully learn. 

Edit: oops-- I realize I'm in /kind of/ the wrong place, for trasngender stuff at least. Still, thanks for replying and stuff anyway guys. Ignore my stupidity. =P

Current Mood: curious
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